Girl's plea for life-saving drug falls on deaf ears

Madi Vanstone has a rare form of Cystic Fibrosis (CF) and requires a life-saving drug, Kalydeco, to...

Madi Vanstone has a rare form of Cystic Fibrosis (CF) and requires a life-saving drug, Kalydeco, to keep her breathing. (Supplied photo)

Christina Blizzard, QMI Agency

, Last Updated: 7:43 AM ET

TORONTO „Ÿ There was a poignant moment at a Queen's Park news conference Monday that put everything in perspective.

Little Madi Vanstone was here to plead for the government to pay for a drug that's saving her life.

She's a tiny girl for a 12-year-old. She has a small voice but, oh my, can she express herself.

As she carefully outlined her illness and how the drug is keeping her breathing, I heard a small sound.

It was one of my colleagues, a long-time TV cameraman who's shot everything from hostage takings to body parts being loaded into a coroner's van.

He was quietly sobbing.

Then I noticed most reporters had tears in their eyes as we listened to this bright little girl with sparkling eyes tell us she desperately needs the government to step up.

It was one of those rare moments when everything came to a standstill.

Madi's message is simple.

She has cystic fibrosis. She needs Kalydeco, a wonder drug that's helping her battle this dreadful disease.

With the drug, she's symptom free.

After Madi's letter asking Kathleen Wynne to meet with her appeared in Sunday's edition of the Toronto Sun, the child was invited to the premier's second-floor office.

When I heard that, I thought for sure the government had finally grown a heart, grown a spine and was about to pay for Madi's drugs.

But no.

There's a whole lot of nuthin' going on in the corner office.


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