Price agreement doesn't mean province will cover Madi's lifesaving drug: Mom

Suffering from Cystic Fibrosis, 12-year-old Madi Vanstone will appeal to Premier Kathleen Wynne on...

Suffering from Cystic Fibrosis, 12-year-old Madi Vanstone will appeal to Premier Kathleen Wynne on Monday for funding for the life-saving drug she needs.

Christina Blizzard, QMI Agency

, Last Updated: 8:44 AM ET

Little Madi Vanstone still doesn’t know for sure that this province will fund her life saving medication, despite the fact all provinces and the drug manufacturer have agreed to a price for the drug.

Madi’s mom, Beth, says recent reports that the province has agreed to fund her drug misrepresent what’s happened.

“They’ve agreed to a price,” she said in a telephone interview Saturday.

“They still have to negotiate other parts of the deal and then the province has to decide whether they’re going to fund it,” she said.

The 12-year-old Beeton child has cystic fibrosis, a disease that’s scarring her lungs.

A new wonder drug, Kalydeco, is saving her life.

It costs $348,000 a year — and it’s not covered by OHIP.

Her dad’s insurance pays 50% of her drug bill. The drug manufacturer picks up 30%. That leaves the family paying $60,000 a year to keep their daughter alive.


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